Small Wins!

Today we had an appointment with the Pulmonary Hypertension team at Children’s. Isla had another echo today. The results were really encouraging. The right side of her heart is smaller and the left side of her heart is going back to it’s normal shape. Our Doctor said that sometimes it takes years to see this type of progress… and sometimes they never see it, so it is very promising. Their aggressive treatment is definitely working! She still needs to remain on all of the meds (4 oral meds and one IV), but it’s possible that it won’t be forever. We are really excited but also want to stay slightly conservative with our reaction. We don’t want to get our hopes up, so we’ll take days like today as a small win and just hope that we continue in this direction. We still just need to focus on one day at a time!

Here’s a selfie from today at our appointment:



Dad having fun with Islabug while we wait for the Doctor:Image


4 thoughts on “Small Wins!

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