A friend recently reminded me that it’s been a while since we updated this. Well, I suppose no news is good news. We went in today for Isla’s follow-up echo. She did great! She was able to do everything without her cousin by her side, and was very brave!
Results show that her heart is 98% normal. Dr. Ivy wants her to stay on meds until it is 100% normal. The fact that we are talking about WHEN it becomes normal is so amazing! Until then she will remain on one medication 3x/day, but we won’t increase the dose which technically means she is weaning.
The only negative thing is when she finally comes off meds, they will need to do a heart cath about 6 months later to check the pulmonary pressure. That scares us considering how she responded the first time, but we will cross that bridge when we come to it.
Our next appointment will be in 9 months! Longest break yet. The picture above is her amazing Nurse and Doctor, and below is Isla playing with the pile of toys they gave her today. 💕